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Caregiver Support

Being a caregiver to someone facing a terminal illness is difficult situation to prepare for. A good first step is to understand what you don't know. Access to helpful resources can often make a big difference, for care receivers and caregivers. 

As caregivers of an enrollee in our program, the Hospice Care team can help you cope with the challenges you will face. Hospice nurses and social workers can assist you in developing a plan to arrange for the resources you need, and can often coordinate resources from other community partners that can be of help.

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Helpful Links

Knowledge is powerful for caregivers, so KishHealth System Hospice has compiled the following list of websites so you can find the information you need:

National Hospice and Palliative Care Organization
Some of the best informational resources we have found for caregivers are provided through the National Hospice and Palliative Care Organization.

National Alliance for Caregiving
The National Alliance for Caregiving is dedicated to providing support to family caregivers and the professionals who help them, and to increasing public awareness of issues facing family caregivers.

AARP Caregiving
This website for family caregivers includes tip sheets, articles, interactive features, links to social networking features such as support groups and discussion boards, and many other resources for those who are caring for a loved one now or who may do so in the future.

National Institute on Aging
Free publications on caregiving offered by the National Institute on Aging.

Alzheimer's Association
For individuals caring for a loved one with Alzheimer’s disease, this site provides a wealth of information and resources.

Family Caregiver Alliance
Family Caregiver Alliance (FCA) provides information, education, services, and research to support individuals caring for family members and loved ones.

My Care Community
My Care Community provides a forum for caregivers to share advice, experiences, stories, tips, and resources with others who are providing care for a family member or loved one.

Powerful Tools for Caregivers
If you regularly take time to help a loved one with errands, personal care, living arrangements, financial and legal concerns, or other activities, you are a caregiver. At KishHealth System Hospice, we understand that caregiving can be stressful—physically, emotionally, and financially. Powerful Tools for Caregivers is an educational program designed to provide you—the caregiver—with the tools needed to take care of yourself and your loved one.

Suggested Reading for Caregivers

KishHealth System Hospice offers a library of helpful books that caregivers in the community are welcome to check out. Come by our office in DeKalb to browse our selection. The following titles are just a sampling of the many resources KishHealth System Hospice offers to caregivers and hospice patients in the community:

  • The Validation Breakthrough by Naomi Feil: simple techniques for communicating with people with Alzheimer's-type dementia
  • The Needs of the Dying by David Kessler: a guide for bringing hope, comfort, and love to life's final chapter
  • The Four Things That Matter Most by Ira Byrock: a book about living
  • It Takes a Village to Say Goodbye by Doug C. Smith, MA, M.Div. and Dorreen K. Rardin, RN, BSN: a book of resources for family and friends of the terminally ill and grieving
  • A Different Season, The Hospice Journey by G. Leigh Wilkerson, RN
  • Final Gifts by Maggie Callanan and Patricia Kelley: understanding the special awareness, needs, and communication of the dying
  • Final Journeys by Maggie Callanan: a practical guide for bringing care and comfort at the end of life


Hospice News

Check out the latest Hospice news and events in the Hospice Newsletter!

>> Download Now (pdf)

Support Groups

KishHealth System Hospice offers many bereavement support groups throughout the year at various locations including Sandwich and DeKalb. 

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